No One Said it Was Easy

I read a post this morning that reminded me of a particular experience in my life.

For just over a year in my mid teens, I volunteered on the oncology floor of a children’s hospital.

Upon arrival each Sunday, my job was to open the playroom to the kids on the floor that were able to make the walk down the hall. Usually three or four of them would make it, pulling IV stands behind them and adjusting the masks strapped across their pudgy faces, swollen from steroids. All of the toys in the room were made of hard plastic to withstand the constant washing in bleach solutions in order to prevent the spread of infection. I had to watch carefully to make sure that after any toy was handled, it was carefully sanitized and dried before being returned to the bins or into another child’s waiting hands. You realize how much toddlers change their mind when each decision requires a two-stage sanitization process!

After the playroom was closed for the afternoon, I would pack up a cart with toys, games and puzzles and make my way down the hall to visit with the kids who were too ill to make the trek to the playroom. I would sit beside them on the beds and assist with puzzles or challenge them to a Nintendo game on their TV. With the kids undergoing bone marrow transplants, our visits had to occur through glass panes, the toys left outside for the nurses to carry in.

Although some faces were familiar from week to week, the oncology floor was a revolving door. Some kids were only there periodically for treatment. Others traveled to San Antonio for special care and then went back to their home hospitals. On the good days, the kids would be released with the hope of remission.

And, of course, many never made it out at all.

Those kids, with their scarf-wrapped heads, bloated or emaciated bodies and blistered lips, were powerful. Their bodies may have been broken and frail, but their spirits were stronger than any I’ve ever seen. I would watch them walk down the hall with only the slightest sharp intake of breath to indicate their pain before breaking out in a huge grin at the sign of the playroom.

Many of these kids had never known life without cancer. All they knew was days of pain, some more and some less. They grew skilled at navigating the endless cycle of hope and bad news.

And through it all, they accepted.

The first one shocked me.

“Miss Lisa. I’m not gonna see you next week.”

“Oh, why’s that?”

“I’m gonna get to fly with the angels!” exclaimed the three-year-old girl, her face lighting up and her hands clasped beneath her chin.

I was taken aback. My initial reaction was to deny. Or to become sad. Or to distract her with something else.

But then I looked at her. And decided that I would let her tell me what to do.

“Flying with the angels sounds lovely. What do you think it will be like?”

We chatted for a few more minutes, the girl telling me all about her angels, until her mom came back towards the room. The girl leaned in and whispered, “I can’t talk about the angels when my mom is here. It makes her sad.”

I gave her a hug and left the room. I wasn’t surprised to see her picture on the memory wall the following week.

She was the first, but by no means the last.

“I need to give you an extra-big goodbye today cause this one’s for real.”

“Do you want me to tell the angels ‘hi’ for you?”

“Take care of the other kids for me.”

They were always right.

Each one came from a child between the ages of 2 and about 8. After that, and they reacted more like adults.

I watched those adults too. Often when I entered a room, the parents used that time to take a little break. I would see their posture fall as soon as they passed the threshold of the room’s door as though the strings on their puppet had been suddenly cut. They would sob, letting it out after holding it in for their kid. They would talk with each other and with the doctors, desperately looking for a way to make their kid okay.

But the kid usually was okay. Not physically, but in spirit. They knew when to fight and when it was time to let go. Much like my first experience, many of them would volunteer that they felt they needed to protect their parents and siblings.

“Tell my mommy I’m going to be okay.”

“I’ll have the angels. My mommy won’t have them.”

“Will you give my brother my teddy bear when I’m gone?”

What the kids sensed but had no words for was that they had acceptance. They were not fighting against what could be. What should be. All they knew was what was.

What the kids sensed but had no words for was that their parents were trying to find acceptance. To try to understand why their baby was being taken away so soon. They were fighting against the unfairness of it all. They were mourning the loss of their child and of the person he or she would become.

It was tragic to witness the adults.

So I focused on the kids.

And, in so many ways, their lives were terrible. All too brief and filled with so much hurt.

But they didn’t dwell on that. Didn’t waste energy on saying that it was unfair. They didn’t hold back their giggles or their grins.

Instead, they shared their spirit with each and every person they met. They became the angels here on earth.

During periods of loss and struggle in my own life, I have thought back to those little angels and tried to remember their lessons of peace and acceptance.

To all the families who have lost children due to cancer, my heart goes out to you. I saw your pain but I cannot imagine its depths. I hope you have received the gift of an angel from your child, watching over you to make sure that you’re okay too.

Childhood Lessons From Unlikely Teachers

Childhood is a time where every encounter and every experience contains a lesson. Here are ten of my favorite childhood lessons and the (sometimes shocking) teachers that related them.

Lesson: Acceptance

Teacher: Selling shampoo to naked people

How it went down: I grew up in an environment where nudity was acceptable. From a young age, I learned that the human body, in all its variations, was natural. I was taught that nudity could exist apart from sexuality and that an unclothed body was not a source of shame or embarrassment. I first appreciated this lesson one summer in early high school when I spent a few days selling shampoo to patrons at a nude sauna at the Oregon Country Fair. I was at the height of teenage insecurity about my appearance and my body. Yet, when standing alongside hundreds of other exposed bodies, my anxieties about my own form dissipated. I realized that I had been accepting others yet judging myself. I have generally had a positive relationship with my body and my weight and I believe that it is because of my early experiences with nudity. On a side note, somehow people wearing nothing but socks appear to be even more naked than those entirely in their birthday suits:)

Lesson: Tolerance

Teacher: A variety of churches, synagogues and temples

How it went down: I was raised in a fairly liberal Methodist church yet I had friends from just about every religious background imaginable. I spent many a weekend at their houses and would attend religious services with their families. It was not uncommon for me to attend a youth group activity with my own church on Friday, visit the synagogue on Saturday and end the weekend with a Catholic mass. As a child, I was accepted at each church and my questions were welcomed and answered thoughtfully (I always had plenty to ask!). I was probably one of the only kids to go to catechism and Hebrew classes even though I was not Catholic or Jewish:) Later on, my mom’s experiences led me to be exposed to the wisdom from the East as well as from the Native Americans. I had friends that were Buddhist and friends that were Baptist. I learned to respect the beliefs and I learned something from them all.

Lesson: Patience

Teacher: Two very different parents

How it went down: My parents could not be more different. My father is an introverted engineer and my mother, an extroverted counselor. And me? Somewhere smack dab in the middle. As a kid, it was sometimes difficult trying to be understanding of each of their temperaments when they were so different from each other and from me. I had to learn (yes, kicking and screaming!) that my way was not the only way and that I needed to be patient with each of them. My mom often says that we choose the parents we need. Yeah, I certainly needed lessons in patience and often still do!

Lesson: Curiosity

Teacher: Books

How it went down: I was an only child who didn’t need much sleep. To preserve their sanity, my parents instituted an “off duty at 9:00 pm” rule when I turned three. As a result, I needed to find a way to entertain myself alone in my room before I was ready to go to sleep. After learning that a xylophone is not an appropriate nighttime toy (who knew?), I turned to books. I started out reading along with records (dating myself here!) until I could read independently. I soon discovered that entire worlds were available to me through the pages of books and that I could discover more with every page turned. I also learned that the Pizza Hut reading incentive program could earn me a free pizza a week:) I’m still an avid reader and questioner, always on the lookout to learn something new.

Lesson: Consequences

Teacher: A hippie music festival

How it went down: By the time I was in high school, many of my friends and classmates had begun experimenting with alcohol and drugs, often to tragic ends. I was never tempted because I had seen the reality. For most teenagers, they only see the glamorous side of drinking and drugging – the movies, the ads, the parties. Because of my time spent camping at a hippie music festival every year, I was exposed to the realities from a young age. I saw the fun parties but I also saw the effects the next day. I witnessed lives spin out of control from one summer to next as festival-goers fell to addiction. The lesson went beyond the effects of drugs and alcohol; I learned that there is no such thing as a free lunch and that every choice has a consequence.

Lesson: Goal setting

Teacher: A Cabbage Patch Kid doll

How it went down: Like many children of the 80s, I was enamored with Cabbage Patch Kids. I was given my first as a gift from my mom, but I soon lusted after a second. My mom smartly chose to make me purchase this one on my own. For months, I saved my allowance while visiting the intended purchase on each trip to the store. I would be tempted by cheaper toys that I could purchase with the amount I had saved yet I was encouraged to hold out until I had reached my goal. That lesson has served me well in life. Although now I see that doll as a waste of money, the ability to work towards a goal is priceless.

Lesson: Compassion

Teacher: A young girl with a profound disability

How it went down: I spent two summers in middle school volunteering at my church with a group of preschool-aged children with special needs. One little girl was the most severe. She had PKU, a genetic mutation that prohibits the body from breaking down an amino acid correctly (this is what the doctors are checking for when they do that heel prick at birth). Her abnormality was undetected and, as a result, she had a very high fever that caused extensive brain damage. I spent two years paired with this child. She was difficult to work with. She would screech and kick. She ripped my earring from my ear and left scratches on my arms. She would hit herself repeatedly and fail to make any eye contact. Even through all of this, I connected with her. Over time, she began to show signs of interaction with me and with her environment. To this day, one of my favorite moments is when she gave me a hug on our last together. She taught me to respond with compassion and empathy rather than fear or aversion.

Lesson: Imperfection

Teacher: An art teacher

How it went down: I was always a high-strung student with perfectionistic tendencies. I would cry when I received a 98, berating myself for failing to earn the final two points. I had an art teacher throughout much of high school that had a policy of never giving a grade higher than a 95. His rationale? Art can never be perfect. True. And neither can life. There is a freedom in embracing the imperfect that I first learned in that tempera paint scented classroom. Of course, I would still cry if I didn’t earn a 95:) After all, I’m not perfect…

Lesson: Adaptability

Teacher: My many “adopted family members”

How it went down: After my parent’s divorced, my mom and I were the only blood relations in the entire state of Texas. Instead of bemoaning this fact, we simply made family. We have a friend who joined us for holidays and trips. I would assimilate into other households for other celebrations. Our definition of family was flexible and fluid. I have used that lesson in my own life, not only with family but with adapting to any situation. You can complain or you can change your perspective and your circumstances. The latter seems a lot better to me.

Lesson: Perseverance

Teacher: A bicycle

How it went down: I’ve shared before about my struggles with riding a bike. Even with my father’s expert tutelage (he was like the Lance Armstrong of the neighborhood, only without the performance enhancing drugs), I didn’t learn to ride a bike until I turned 10. Go ahead and laugh, I know you want to:) My parents would not let me weasel out of this task, even though I tried. It took tears, threats and bribes (two banana splits!), but I finally learned how to pedal without falling over. Even more importantly, I learned the value of hard work and determination and that true failure only comes when you do not try.

I am thankful for these childhood lessons and childhood teachers. It’s amazing what we can learn from others even when they may not know that we are studying.

Here There Be Tears

As a kid, I was always fascinated with the portrayal of old maps. I loved the rather amorphous forms of the landmasses. I chuckled at the fanciful guesses about what might lie beyond. And I especially liked the tiny illustrations of dragons at the edges of the plot, warning adventurers of the dangers that can be found in the great unknown.

I’ve had my own dragons at the periphery of my life. Areas where I have dared not tread in case the monsters of memory are too real. Earlier this week, I braved the edges of my mapped life and I faced the unknown.

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Pretty scary, huh?

It turned out not to be too bad. There were tears but nothing I couldn’t handle.

I have been a dog lover from the get-go. I befriended my parent’s adopted stray as soon as I could feed him from my high chair. From then on, I never went more than a few months without at least one dog in my household. By the end of my marriage, we had three dogs: an elderly, opinionated pug, our “special child” Boston terrier and Glottis, a happy go lucky lab mix. When my ex left me and his life, he locked the three dogs in the basement with limited food and water. Since I was out of town, they had been alone for more than two days when he sent the text. I have a feeling the only reason he sent the message was out of guilt, knowing that the dogs would not survive until I was slated to return. Upon receiving the text, I was able to have a friend take care of the dogs until I could make in back. That same friend took care care of me, offering me a room in her home for the next year.

I knew right away that I could not keep the dogs. I was in no shape emotionally or financially to be able to care for them. I would be living in a guest room in a house with a premature and medically fragile baby. They needed new homes.

I was not strong enough to take on the daunting and devastating task of finding homes for the pets. A friend from work spearheaded the networking connections while my parents tried the shelters and rescue organizations. Over the next few weeks, new homes were found for all.

Within two days, I went from having three dogs to having none. I had to release the care of those innocent creatures who trusted me with their guardianship. I cried more in those two days than I had in the previous few weeks. I knew I was making the best decision for them but, damn, it was hard.

Glottis was the baby in the family. She was sweet and extremely good-natured. She had been impacted the most by the recent upheaval. She used to get so upset when I cried, staying by my side and whimpering along with my keening. A friend at work arranged Glottis’s new home at her parent’s farmhouse in rural Alabama. Glottis would have room to run and new siblings to play with. It was perfect.

On the day of the adoption, my mom and I drove Glottis to the visitor center on the state line, where the transfer was to occur. I cried the whole way while rubbing the thick fur around her neck and ears. I liked Glottis’s new mom right away. She recognized the dog’s sensitive and cautious nature and gave her the time and space she needed to become comfortable. As we sat around a picnic table, the leash was slowly transferred from my hand to her’s. It was done.

Over the years, I received pictures and reports of Glottis (now named Gabby:) ) and her adventures on the farm. I could tell she was thriving. They were able to give her a better life than I could have during that period. It was such a gift to not worry about her, to know that she was loved and cared for.

Throughout this time, I had a standing invitation to visit, but I was afraid of facing that part of my past.

Giving up the dogs was the most painful part of the whole experience. Tears still flow even today when I write or talk about it. Tears from the loss. Tears from the innocent beings caught in the middle. Tears that come from a feeling of failure in my inability to care for them. Tears of gratitude for the people who worked tirelessly to find them homes and for those who adopted them and loved them.

This summer, I finally felt ready.

I’m glad I did. It felt so good to be greeted by that crazy tail, wagging in a huge circle while those familiar ticklish puffs of air danced around my face and she sniffed and greeted me. I believe she remembered me. I received the usual cautious hello, but then her eyes widened and the enthusiasm overflowed. The memories of her came flooding back, opening windows into my former life which I had long since painted shut. It wasn’t painful. It wasn’t scary. It was bittersweet, heavy on the honey.

Glottis AKA Gabby with one of her new sisters
Glottis AKA Gabby with one of her new sisters

I felt such a bond with her. We had both been abandoned and were forced out of the life we knew. We both had families that took us in when we needed it most. We have both changed, losing some aspects of our old selves and adopting new passions. We both have found loving families and are surrounded by people who care about us. We are survivors.

I watched Glottis, content sitting  on the porch between her two moms. She was at peace. And so was I.

Yes, here there be tears. But they are tears flowing over smiles.

It’s time to redraw the map, replacing the dragons with good memories and wagging tails.

Related: R.I.P. All Terrain Pug

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For All You Parents…

I wrote this piece about how to help your child in math for Yahoo. This is the same advice I give the parents of my 8th graders during open house every year. I find the parents are often more fearful of algebra than the students:)

I thought I’d share it here as well, since I know many of you are parents of school age children. I hope this can help lower the stress level in your home this fall!

How to Help Your Child In Math (When You Don’t Know It Yourself)

You Win Some When You Lose Some: A Father’s Day Tribute

Ice skating with dad

Four years ago next month, I lost my husband. Four years ago next month, I gained a father.

My parent’s divorce occurred when I was in elementary school. My dad then relocated across the country shortly after I turned 11. We did not see much of each other for the rest of my childhood or throughout my twenties. In fact, we didn’t really know each other.

Four years ago next month, I went to visit my dad for the first time in several years. I think we were both a little nervous, as were trying to learn the choreography of our adult relationship. I was with him when I received the text that ended my marriage. In that instant, I gained a father in the truest sense of the word.

With no hesitation, I became his little girl again. He moved into action immediately, doing what he could . He held my hand for the endless trip back to Atlanta, not even letting go when he drifted off to sleep on the plane. He made the phone calls I couldn’t and stayed in the house with the dogs when I wasn’t able. He cried with me and cursed with me. He hurt with me and he healed with me.

Four years ago next month, I gained a father. A guide. A cheerleader. A mentor. A friend.

Sometimes, it takes a loss to realize what you have. You win some when you lose some. Dad, I’m glad I won you:)

Related: Daddy Issues

Tiger is excited to see you!